Health Technology Assessments (HTAs) are gaining importance with support of governments in the Western World. With evidence synthesis and economic modeling gaining in accuracy and complexity, there is an increasing demand to assess the quality and validity of the data used for these studies. In keeping with the trend of the “Big Data” explosion, “Real World Evidence” is being seen as the answer to getting HTAs to the next level of accuracy. Hence there is the need for better tools to document and process “Real World Data”. Registries have been existing for more than half a century now. However; their use was primarily done for epidemiological research. This article discusses how with the turn of the century, registries have evolved from being just portals for enrolment of patients to being highly sophisticated tools for economic modeling and cost analysis. We also discuss the challenges faced in optimal utilization of registries and how they can be addressed by better designing and implementation. We also discuss some policy decisions which have been taken to ensure that registries will continue to evolve and be a very important tool in HTAs.
Patient Registries, Health Technology Assessment (HTA), Comparative Effectiveness Research (CER), Real World Data, Evidence Based Medicine (EBM), Big Data.
Proteomic analysis of oilseed cake: a comparative study of species-specific proteins and peptides extracted from ten seed species.
Kotecka-Majchrzak K, Sumara A, Fornal E, Montowska M
Journal of the science of food and agriculture. 2021; 101(1): 297-306
Two-year effectiveness and safety of golimumab in ulcerative colitis: An IG-IBD study.
Pugliese D, Privitera G, Rogai F, Variola A, Viola A, Laterza L, Privitera AC, Allocca M, Bossa F, Cappello M, Daperno M, Lorenzon G, Mazzuoli S, Principi M, Sablich R, Moser L, Ferronato A, Traini S, Tapete G, Bodini G, Di Girolamo M, Grossi L, Mocci G, Ricci C, Saibeni S, Festa S, Spagnuolo R, Cortelezzi CC, Mocciaro F, Rizzello F, Armuzzi A,
United European gastroenterology journal. 2021; 9(1): 102-109
Recent Advances in Food Emulsions and Engineering Foodstuffs Using Plant-Based Nanocelluloses.
Bai L, Huan S, Zhu Y, Chu G, McClements DJ, Rojas OJ
Annual review of food science and technology. 2021; 12(): 383-406
Combining multiple decedent data sources for a population-based picture of end-of-life health care utilization.
Ma J, Beliveau J, Snider W, Jordan W, Casarett D
Journal of pain and symptom management. 2021; ():
Men's Knowledge of Anticipatory Guidance Topics: Results from a Nationally Representative Survey.
Lee SJ, Walsh TB, Lee JY, Tolman R, Garfield C, Seabrook RC, Singh V
Academic pediatrics. 2021; ():
Applications of chitosan and chitosan based metallic nanoparticles in agrosciences-A review.
Chouhan D, Mandal P
International journal of biological macromolecules. 2021; 166(): 1554-1569
Influence of germinated brown rice-based flour modified by MAse on type 2 diabetic mice and HepG2 cell cytotoxic capacity.
Nguyen NTL, Nguyen BDT, Dai TTX, Co SH, Do TT, Tong Thi AN, Oladapo IJ, Nguyen Cong H
Food science & nutrition. 2021; 9(2): 781-793
MRI-based radiomics approach for differentiation of hypovascular non-functional pancreatic neuroendocrine tumors and solid pseudopapillary neoplasms of the pancreas.
Song T, Zhang QW, Duan SF, Bian Y, Hao Q, Xing PY, Wang TG, Chen LG, Ma C, Lu JP
BMC medical imaging. 2021; 21(1): 36