Abstract

Background: Among the developmental disorders, autism spectrum disorder (ASD) and intellectual disability (ID) are the most common disorders present in human beings. Both of these account for 3–5% of the population. Early intervention with applied behavior analysis in natural surroundings may lead to improvements in I.Q. and change in ASD diagnosis. For young children, caretakers are the first source of instruction in social behavior and training of caretakers is considered very important for effective intervention programs for autistic children. Therefore, intervention strategies should be made through a joint approach between parents and professionals.

Aims and Objectives: To assess the knowledge, attitude, and practice of caretakers of adults with ASD and ID regarding causes, management, and rehabilitation.

Materials and Methods: Caretakers of 100 adults with ASD and ID were selected randomly from APAAR, an NGO based in PIMS; Chanan, an association of caretakers of adults with ID and ASD and from the records with District Education Officer, Jalandhar, were interviewed on a semi-structured pro forma. The data so obtained were analyzed statistically. It was a one-time study. Inclusion criteria – caretakers of adults with ID and ASD who were willing to participate. Exclusion criteria – caretakers of adults with ASD and ID who were not willing to participate.

Results: 19 (18.45%) of caretakers of adults with ASD/ID believed that their condition was due to some medical condition whereas 77 (74.76%) believed that it was due to some old karma. 24 (23.3%) parents of children with ASD/ID undertook medical treatment including prevocational training and rehabilitation whereas 72 (69.9%) parents took treatment for traditional healers. 7 (6.8%) did not participate in the study.

Conclusion: The majority of caretakers of adults with ASD/ID believed that the condition of their wards was due to old karma and possession by evil spirits as compared to medical causes and so they preferred traditional healing methods instead of medical treatment.

Key words: Autistic Spectrum Disorders; Intellectual Disability; Care Givers; Perception